I really don't even know how to blog this. I officially fired my providence oncologist. I am now getting treatment at Dana farber.
Dr Chan, who I just met with for the second time actually viewed my scan unlike the providence dr. There is a mass on my uterus, as well as numerous nodules all over my peritoneum(abdominal lining). That hernia that has been bothering me, that's a tumor. All my incisional sites that have big nodules are all tumors that I can literally see and feel poking out of my stomach. I have been told by numerous drs that it was just scar tissue but this oncologist confirmed with actually examining me and comparing to scans that the tumors formed on the scar tissue.
Once the cancer has metastasized, which is what has now happened to mine, meaning it has spread to other parts of the body from its original origin, you will never be cured. This dr suggested the same chemo regimen as my providence dr. She said that we can try to control the disease with chemo and when it doesn't work anymore we will try another chemo. She said that without chemo from diagnosis she would give someone 1 year, 2 years with chemo. My cancer is extremely aggressive. I wanted to try to treat it with a new diet but Since I am in so much pain and I already used up that 1 year I feel my only option is to do treatment.
I have no hope for drugs curing me but doing a drastic diet change that I have already started, I believe is my only hope. I am talking massive amounts of juicing and raw veggies.
I am scheduled to start receiving chemo a week from today up in Boston.
Pray for me, pray that I can keep my positive attitude.
prayers for you and your family....
ReplyDeleteLeah, you have been so strong and so positive. You are now in the best hands. To say we are all extremely upset/disappointed/pissed off with your Providence doctors is an understatement after reading this. But, that doesn't help you. Love and light and prayers will help you get through this. I'm here for you. Love, Jackie
ReplyDeleteLeah, Love to you and your family and your mom, my dear and special friend. Be strong and confident in the decisions that you make. You have handled your situation with so much courage and grace. You deserve a miracle. They are not unheard of.
ReplyDeletemissy
I am sorry to read this news. Also sorry you will have to travel to Boston for treatment. Please let me know if I can help you or the family in any way as you head into these next months of treatment.
ReplyDeleteCady
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ReplyDeleteI am so sorry that you were let down by so many doctors on an accurate diagnosis. Sending all my positive thoughts and love your way, and hoping that the cure lies in chemo, your new diet, and your perseverance through it all.
ReplyDeleteLeah, I feel so much for you and your family. You are a part of our Christian family, and I know that we are all praying to God for your recovery. The only thing I can say is to just rely on God, and that HE has the final say on any and ALL matters. Stay close to the Lord, Leah. God bless you and your wonderful family. -Rusti-Jo
ReplyDeleteLeah, Words are weak comfort at this point but as Kim suggested the diet you are on is the great white hope and you are an amazingly courageous woman. Please know that we are all here for you. We pray that you and your family find some type of strength to help you conquer and navigate through this moment in time. Always remember that I am a stones throw away and that I have 22 soldiers at the ready to help in any capacity that we are able to. We care and we will do anything that can make your encounter easier! Love Deb and the PHS Cheer Family
ReplyDeleteLeah,
ReplyDeleteI think of you and your family often. I wish you well, I hope for understanding and most of all, I am in awe of your courage. I hope something beautiful happens to you today.
DanH
Leah,
ReplyDeleteYou are in my prayers every day and my prayer circle of friends too.
With everything that you are facing and have been through is just unbelievable on how strong you are.
We are all here for you and your family in any way we can help.
Nancy R.
Thinking of you every day Leah. You are an incredible person and a wonderful inspiration to many by your demonstrated courage going through this process. Stay strong and keep up the fight. There are a lot of us here rooting for you!!!
ReplyDeleteDaveL
We are thinking of you and praying for you Leah. Let us know if we can assist in any way.
ReplyDeletewe love you leah, stay strong!!!
ReplyDeleteAdorable Leah, (I hope this works as I'm a little klutzy on the blogosphere stuff so please understand)
ReplyDeleteBryan never told us you are Knock Down Gorgeous and your children likewise. Yowser! I would have never thought you were Rachael's cousin--that's a joke. I adore NuTone. And she's gorgeous, too. At least I used to think so until she tried to upend me as she blew past me in the Blessing of the Fleet road race so she would look better in the final standings. Such a brute!
I love your writing. You are a fabulous writer... easy to read and connect with, and you convey the facts and your feelings in a way that glues me to the monitor.
I enjoy Brian's company at our meetings. As you pointed out somewhere in here, it is nice to meet and get to know some younger people your own age. There are so many older folks at some of our meetings. Don't get me wrong, I do like the older folks.
Anywho, please keep pounding on the keyboard. I love what you say and how you say it. And I'm thinking a lot about you and your family. And waiting for more on your blog.
A Huge hug to all (except Rach when she's running....) ONLY kidding,
Mark
The 3 p's
ReplyDeleteStay Positive.
Patient &
Pee allot with the juice :)
God Bless her!
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ReplyDeleteStay strong Leah! You're a fighter :) I'll be coming home a lot on the weekends and I'll help out as much as you all need me to.
ReplyDeleteLove,
Hadley
Prayers for your beautiful, hopeful and peaceful heart - you are an inspiration and role model for courage in the face of adversity.
ReplyDeleteSarah
Leah,
ReplyDeleteI'm thinking of you and your family all the time. Let me know if there is anyway that I can help. Continue to stay positive and strong!! You're inspiring!
Dani
Leah,
ReplyDeletePlease know that you are in my thoughts and prayers.
Kate
So sorry to hear this, Leah. We're praying for you, your family, and every doctor and person who touches you.
ReplyDeleteHI Leah, I work with Josie at Salve and she sent me the link to you blog. glad to hear you are thinking of food as medicine. That will help you get rid of foods that aren't helping you (meat, food colorings, sugar, alcohol) get well and focusing on foods that will enable your body to fight the cancer. You made a statement that once the cancer is metastasized you will never be cured....I'm here to tell you that you can get well even with that situation. My sister did. If you like I will print out some info and give to Josie to give to you. If you have any questions just email. the juicing is great! Be sure and eat or juice 2-3 cups of vegetables from the broccolli family, add 2 handfulls of wheat grass in the juicing, as well as several slices of ginger root which fights inflammation and cancer. you can get the wheat grass at the casey farm farmer's market on Saturday morning, just trim with sissors it actually tastes very sweet, these things will aid your liver in your fight. The cancer may be aggressive but you can be too!
ReplyDeleteLeah, my dear friend, I am so sorry to hear about this news. It is hard to believe - you are such an incredible woman and you don't deserve the struggle. I have been and will continue to pray for you to keep your positive attitude and outlook on this journey. You are in inspiration to us all and we love you dearly. Continue being a cancer warrior and know that I proudly wear my shirt and send you positive thoughts and energy. I would love to see you soon! Love, Brenna
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